Autism was the fifth most common ‘what is?’ question on Google in 2014, which gives us an estimate about a general person’s curiosity regarding the topic. It isn’t surprising that autism has become a subject of interest given that the number of people diagnosed under the Autism Spectrum Disorder seems to be on the rise every year all around the world. The condition which affected up to one in 110 children a decade ago is currently affecting one in every 68 children born in the United States. According to nation-wide comparisons, more children are affected by autism than by diabetes, AIDS, cancer, cerebral palsy, cystic fibrosis, muscular dystrophy or Down syndrome—combined.

 

Given the rising prevalence rate as well as the width of the spectrum, autism has been prioritised and recognised as a health issue by many governments worldwide. Nepal is way behind in that regard. It is true that people with autism in even the most developed nations face their share of challenges despite the fact that autism is prioritised as a health issue. It is also true that Nepal does not enjoy the resources and facilities that other countries do. Now, getting the right recognition as well as adequate commitment from the government is essential. Without this, concrete progress will never be made. 

 

Autism is also finally on the radar of the Health Ministry, which is another sign of progress. The Leprosy Control Division under the Government of Nepal works to curb instances of leprosy, which is one disease that Nepal has successfully reduced to low prevalence levels, and this division is now the unit responsible for working towards the welfare of those who are affected by  neurological disorders like autism. While the fact that the Leprosy Control division is taking over governmental autism-related activities may seem unusual, at least it signals a start. Now that Nepal is working towards complete leprosy elimination, the Leprosy Control Division might be able to channel some time, energy and resources towards autism. It is better to have a unit that has the wrong name but the right intentions towards an issue rather than to have an issue shunted aside entirely.

Autism is a life-long condition without a known cause or cure. However, people in the spectrum can lead better lives through early intervention, inclusive education and community support. My friend in the United States sent me a link about research that transfers genomes of persons with autism and their families to a cloud database to isolate the causes of autism and find new genetic targets for treatment. While I don’t expect to share similar links with her about research of that nature in Nepal, I am hopeful that those people with autism who are currently living in Nepal and who face stigma, systemic biases and misunderstanding will be seen in a positive light with more acceptance and care when the larger society realises how dealing with autism can be easier with a little understanding and empathy.